connecting the world one survivor at a time
I am new at this and feel lost. I am reaching out for some kind of support and help understand so much that I have not been able to understand about having to deal with having a brain injured adult daughter and how to still be able to be a mother and have some time for myself. I have a 29 year old daughter who suffers TBI from a automobile accident on 07/17/2007. Since her accident I have delt with so much unessessary finacial legal issues to get conservatoryship of my daughter because she…Continue
I divided my weekend between doing this-n-that and moving at my own pace on Saturday, and working on Sunday. All day Sunday, I spent catching up on work that I had fallen behind on -- figuring out better ways of doing things, and just digging into what I've got going on.
I have a very busy job that tends to get the better of me. And I got tired of being behind on so many things. So, I took the day and caught up.
Now I'm ready to start the week with a cleaner slate than I had on…Continue
Posted by Second Chance to Live on April 21,…Continue
This is what we woke up to this morning!
I managed a full marathon today. One thing I have to point out. I have downloaded the Ricky Gervais Podcasts to my I phone. There are…Continue
I find myself exhausted about 5-6 hours after I get up in the mornings. My neurologist says this is normal for TBI because the brain hits critical mass and has to rest it’s self in a shorter time span. I can stay it off with caffeine but this usually has more dangerous effects then a nap. I have pretty much adapted to this new way of life and plan my days so that I can come home mid day and sleep. However, this also makes it so that is cannot work a full shift, or…Continue
Posted by Second Chance to Live on April 17,…Continue
Added by Craig J. Phillips MRC, BA on April 19, 2011 at 1:00pm — No Comments
Added by David McGuire on April 18, 2011 at 2:48pm — No Comments
Being a TBI Survivor is a mixed bag. On the one hand, hey, you survived. You are more than just a memory.
On the other hand, life as you knew it is likely over. This poses an unimaginably large issue for the majority of survivors, I'm sure. It did for me. I coped by denying that the injury was real (I maintained it was all a dream), then by making silly little "magical deals" with myself ("If I can do this before…Continue
Added by Shelah Riggins on April 18, 2011 at 11:13am — No Comments
It's all about giving ourselves a chance to get better -- not giving in to the temporary setbacks, and sticking with it, even though it is a LOT of work.
If more of us believed recovery is possible, and we put all our hearts into it,…Continue
Added by BrokenBrilliant on April 11, 2011 at 5:49am — No Comments
Finally, I got the chance to have a Neuro-psychological test. I went to a hospital that is up to date on new technology. A very high rated Neurology Department in Philadelphia Pa.
I was completely disappointed after all the testing and interaction with the neuro-psychologist was finished.
It seems they were using those stupid Coma tests on me. ( the old tests originally designed a million years ago to measure brain injury by how long you were…Continue
I went on a School trip to New York last week. I had a blast going to all the museums and Blues clubs and sight seeing. I did so much stuff that I went without my usual amounts of sleep and began to wear down. The final night there I had a seizure and was exhausted on the flight home, but it was almost worth it because of all the fun I had. It was only today that I looked at the pictures of my trip and noticed that each day as I went with out sleep my right eye became more dilated and…Continue
Here is my dilemma.
The cognitive and physical deficits on me are present, but my MRI's have been with the Tesla 1.5- all of the studies. I am almost two years post TBI and I still have motor skill problems and cognitive stuff (it's a list)
Has anyone out there been almost crazy without any findings of brain scan (or in my case "something" is there but undetermined) that went on to have the stronger scan at Tesla 3? Will it pick stuff up even…
So i was at a bookstore today reading this new concept that therapy may embrace. the idea is that after a major life trauma that carries negative memories, correcting it can only be achieved by recreating it and surrounding it with better memories while addressing the trauma in a safe place. this concept is getting back on the horse thinking and im all for it. i read a few other publications but this kinda stuck with me so i started to unravel my own idea of trauma. my accident happend…Continue