April 2011 Blog Posts (21)

Magnus

We buried our dog today. Magnus, our English Mastiff, was the first major purchase that Mark and I made as a couple,  I think even more than buying our home. Magnus came into our lives as a six week old, 35 pound, wrinkly, black and tan ball of love. He filled our home with laughter and had more love than his 260 pound frame could even offer. He listened to our complaints quietly, offering a tail wag or a slobbery kiss.



He was our baby.



Magnus died in my lap on the floor of… Continue

Added by Paige Day on April 30, 2011 at 6:44pm — 3 Comments

I am lost, depressed, stressed and confussed

 I am new at this and feel lost. I am reaching out for some kind of support and help understand so much that I have not been able to understand about having to deal with having a brain injured adult daughter and how to still be able to be a mother and have some  time for myself. I have a 29 year old daughter who suffers TBI from a automobile accident on 07/17/2007. Since her accident I have delt with so much unessessary finacial legal issues to get conservatoryship of my daughter because she…

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Added by Janet fraser on April 30, 2011 at 1:22pm — 13 Comments

This is a good day

I divided my weekend between doing this-n-that and moving at my own pace on Saturday, and working on Sunday. All day Sunday, I spent catching up on work that I had fallen behind on -- figuring out better ways of doing things, and just digging into what I've got going on.

I have a very busy job that tends to get the better of me. And I got tired of being behind on so many things. So, I took the day and caught up.

Now I'm ready to start the week with a cleaner slate than I had on…

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Added by BrokenBrilliant on April 25, 2011 at 5:42am — 6 Comments

Weather was a little better today!!

Ending up in PynnsBrook

Ending up in PynnsBrook by temporallobe at Garmin Connect - Details

Today started off well and for the most part was a perfect run. It was cold, snowy but the wind was on my…
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Added by David McGuire on April 22, 2011 at 2:44pm — 5 Comments

Birchy Lake and Beyond!!

Birchy Lake and Beyond!! by temporallobe at Garmin Connect - Details

 

 

This is what we woke up to this morning!

 

I managed a full marathon today. One thing I have to point out. I have downloaded the Ricky Gervais Podcasts to my I phone. There are…

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Added by David McGuire on April 21, 2011 at 2:33pm — 3 Comments

New sleep patterns



 

 

I find myself exhausted about 5-6 hours after I get up in the mornings. My neurologist says this is normal for TBI because the brain hits critical mass and has to rest it’s self in a shorter time span. I can stay it off with caffeine but this usually has more dangerous effects then a nap. I have pretty much adapted to this new way of life and plan my days so that I can come home mid day and sleep. However, this also makes it so that is cannot work a full shift, or…

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Added by Inez on April 20, 2011 at 12:33pm — 6 Comments

what im all about

hello to all my peers my name is mattelford im now 25 years of age and feel like im on the home stretch of a 3 three year recovery proccess on october 17 2009 i was suddenly a victim of a ruptured anuerysm causing a sub archnoid hemmorhage leaving my left arm and hand as well as leg paralyzed (left hemiplegia)this injury happened to me at 23 years of age seemingly out of the blue and for the last couple years ive spent all my time and focus chasing down happiness with everything i have i am now… Continue

Added by matthew phillip elford on April 19, 2011 at 12:30pm — 1 Comment

From South Brook Newfoundland and on

From South Brook Newfoundland and on by temporallobe at Garmin Connect - Details



Today was mentally exhausting. At the 20kl mark my music ran out of power, at the 30kl mark my Garmin ran out of power. At about 36kl I ran out of power.



It is mentally frustrating to push…
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Added by David McGuire on April 18, 2011 at 2:48pm — No Comments

On acceptance, ownership and empowerment

Being a TBI Survivor is a mixed bag.  On the one hand, hey, you survived.  You are more than just a memory.

 

On the other hand, life as you knew it is likely over.  This poses an unimaginably large issue for the majority of survivors, I'm sure.  It did for me.  I coped by denying that the injury was real (I maintained it was all a dream), then by making silly little "magical deals" with myself ("If I can do this before…

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Added by Shelah Riggins on April 18, 2011 at 11:13am — No Comments

Somewhere in Newfoundland to South Brook by temporallobe at Garmin Connect - Details

Click below and you can see the run on Garmin/Google Earth

Somewhere in Newfoundland to South Brook by temporallobe at Garmin Connect - Details



Long run today. Felt good. Good weather, beautiful scenery.…



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Added by David McGuire on April 17, 2011 at 5:02pm — 3 Comments

New post up at my blog "Broken Brain-Brilliant Mind"

Give yourself a chance to recover

It's all about giving ourselves a chance to get better -- not giving in to the temporary setbacks, and sticking with it, even though it is a LOT of work.

If more of us believed recovery is possible, and we put all our hearts into it,…

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Added by BrokenBrilliant on April 11, 2011 at 5:49am — No Comments

TBI Center

I have seen the idea of a tbi center who decided this is where we need a center, and if the state funds this they are going to tell us we gave you a tbi center, as funding is difficult is this really a good way to use a million dollars that money could and should be used to help the groups that are doing these things now, I know groups are hanging on by a thread and we are going to buy a building for a clubhouse, I am not happy about sneaky legislation for private interests while ignoring the… Continue

Added by George on April 10, 2011 at 9:07am — 14 Comments

I had a neuro-psychological test done. It was exhausting and humiliating.

 

Finally, I got the chance to have a Neuro-psychological test.  I went to a hospital that is up to date on new technology.  A very high rated Neurology Department in Philadelphia Pa.  

 

I was completely disappointed after all the testing and interaction with the neuro-psychologist was finished.

 

It seems they were using those stupid Coma tests on me. ( the old tests originally designed a million years ago to measure brain injury by how long you were…

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Added by Jackie on April 9, 2011 at 7:41pm — 15 Comments

Denial is a river in Egypt



I went on a School trip to New York last week. I had a blast going to all the museums and Blues clubs and sight seeing. I did so much stuff that I went without my usual amounts of sleep and began to wear down. The final night there I had a seizure and was exhausted on the flight home, but it was almost worth it because of all the fun I had. It was only today that I looked at the pictures of my trip and noticed that each day as I went with out sleep my right eye became more dilated and…

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Added by Inez on April 8, 2011 at 9:19am — 6 Comments

TBI Diffuse Axonal Injury Tesla 3 vs Tesla 1.5 any input?

OK-

Here is my dilemma.

The cognitive and physical deficits on me are present, but my MRI's have been with the Tesla 1.5- all of the studies. I am almost two years post TBI and I still have motor skill problems and cognitive stuff (it's a list)

Has anyone out there been almost crazy without any findings of brain scan (or in my case "something" is there but undetermined) that went on to have the stronger scan at Tesla 3? Will it pick stuff up even…

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Added by April on April 5, 2011 at 7:30am — 3 Comments

history repeat and they dont see it

So i was at a bookstore today reading this new concept that therapy may embrace.  the idea is that after a major life trauma that carries negative memories, correcting it can only be achieved  by recreating it and surrounding it with better memories while addressing the trauma in a safe place.   this concept is getting back on the horse thinking and im all for it.  i read a few other publications but this kinda stuck with me so i started to unravel my own idea of trauma.  my accident happend…

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Added by Claudio on April 3, 2011 at 12:25am — 1 Comment

Watchless...

I think about the past five years with a kind of sluggish wonder. Our family has been through so much, each of us having our breaking points when the other ones have had to reach out and lift us out of the pit of despair.



Thankfully, they haven't' all happened at the same time.



We have watched Mark learn to talk again, we watched him learn to walk and coordinate his movements and restrain his impulses. As a family, we have helped him with his memory and… Continue

Added by Paige Day on April 2, 2011 at 4:55pm — 6 Comments

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