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Has anyone tried chiropractic after TBI?
19 Replies

This is about my partner again.He is doing really well, but he has reduced neck and shoulder mobility and reduced voice-power.  Only I and a friend had noticed.  I took him to a chiropractor who…Continue

Started this discussion. Last reply by Debbie Wilson Jan 1, 2012.

Amazing Spinal injections of etanercept in treatment of TBI?
5 Replies

Just watched a bunch of amazing results on alzheimers and stroke with etanercept injections into cerebral spinal fluid on this site: http://www.nrimed.com/Can't…Continue

Started this discussion. Last reply by Queenie Alexander May 26, 2012.

Sound, noise, music and TBI
3 Replies

Here is another question I have.  It is about new reactions to old sounds.My partner liked dogs, but hated dog barking.  Since the TBI, however, he has developed a huge sensitivity to my dog's…Continue

Started this discussion. Last reply by Richard J Sep 22, 2010.

Views of Argumentativeness and TBI
11 Replies

I am keen to hear from survivors and carers on their experiences and explanations regarding frequency, depth, duration, causes of arguments post TBI.There are some views that TBI sufferers can tend…Continue

Started this discussion. Last reply by Emerson Oct 3, 2010.

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Queenie Alexander replied to Nick Smith's discussion What the hell is wrong with me?? Need help and advice!!!
"Oh, silly me, I see that you said that you have had an MRI.  However you have not mentioned any endocrinology, which is what I am suggesting re the hormone performances, notably the pituitary."
Dec 25, 2012
Queenie Alexander replied to Kristien Jones's discussion Is it time to seek the help of a Neuro-Psychologist?
"Hi Kristien, One thing I forgot, which a psychologist emphasised, was to make "I" statements.  That is start sentences saying, "I feel hurt that .. you are discounting my feelings/asking me to do something unreasonable..."…"
Dec 25, 2012
Queenie Alexander replied to Terri Sinclair's discussion I am so depressed during the holidays
"I live in Australia, so what I would do might not work where you are, but I might go and see a local politician and tell them about your son's predicament.  Sometimes they try to help and sometimes they can help."
Dec 25, 2012
Queenie Alexander replied to John Donne's discussion Dep of Rehab sending me to Mental Health Center, shoud i feel offended?
"Psychiatry is not very aware of brain injury.  Make sure they know that you have a brain injury. Neuropsychology and neuropsychiatry are brain injury aware.  The brain injury aware ones tend not to use medications and use different…"
Dec 25, 2012
Queenie Alexander replied to Nick Smith's discussion What the hell is wrong with me?? Need help and advice!!!
"Have you had an MRI for diffuse axonal brain injury? Have you had your pituitary gland performance, thyroid function and blood sugar tested? The pituitary is the head gland in the body and it is located in the brain, around the centre and could…"
Dec 25, 2012
Queenie Alexander replied to Kristien Jones's discussion Is it time to seek the help of a Neuro-Psychologist?
"Hi Kristien, It does sound like you need an evaluation by a neuropsychologist and that your general practitioner should refer you to one. I agree with the person who suggested a neurologist too.  I suppose you never had an MRI after your…"
Dec 25, 2012
Queenie Alexander left a comment for Janette Gay Miksik
"Welcome, Janette. I am a caregiver and I have a lot of respect for my brain-injured partner, but sometimes, because of his memory and the way he overestimates his capacity to take care of important things, there are consequences that I find very…"
Oct 26, 2012
Queenie Alexander replied to Dianne Hornsby's discussion My brother has a diffuse axonal brain injury and I have a lot of questions. Help!
"This is a quick reply to Sonia about the shunt. I imagine that there are other ways to deal with swelling of the brain, using drugs and hormones - cortisone, dexamethasone (I'm not real familiar with these). A certain amount of swelling is…"
Jun 20, 2012
Queenie Alexander replied to Dianne Hornsby's discussion My brother has a diffuse axonal brain injury and I have a lot of questions. Help!
"Hi Arthur, However you wrote all that, you must have been interested in what you were thinking, because you wrote very fluently and well.  I know nothing about chrono-biology but I can tell you that James has always described me as…"
Jun 12, 2012
Queenie Alexander commented on TBI Survivors Network's group Brain Injury Public Policy Advocacy Group
"Hi all, Thanks for inviting me to join this group.  I am currently focused on writing a book about my partner's brain injury because I think that it covers areas not previously covered, notably, the kinds of difficulties a software…"
Jun 11, 2012
Queenie Alexander joined TBI Survivors Network's group
Jun 11, 2012
Queenie Alexander left a comment for Paula L Florentine
"Hi Paula, I am not a great correspondent, but thank you for inviting me to be your friend.  I should say that I don't drink alcohol at all and have not done for over 20 years.  It was the source of my own brain problems and much else,…"
Jun 11, 2012
Queenie Alexander and Paula L Florentine are now friends
Jun 11, 2012
Queenie Alexander replied to Arthur Levine's discussion For Care-Takers, and their TBI'ers
"Took a quick look at it.  Seems like a really big and useful initiative. By the way, my partner, James, (who is into linux and was studying C#) decided to join tbisurvivorsnetwork to reply to your post that I passed on to him a few days…"
Jun 11, 2012
Queenie Alexander replied to Dianne Hornsby's discussion My brother has a diffuse axonal brain injury and I have a lot of questions. Help!
"Dear Arthur, Just saw your reply.  So great to read you, and amusing.  I love the stuff about Linux and will copy it to James and push him to read it soon.  It is now 01.20am and I am going to go to sleep, but I want you to know how…"
Jun 8, 2012
Queenie Alexander replied to Joe Martin's discussion Craig is a hero
"As a carer, I'll second that.  I have had a great deal of help from these pages.  What a brilliant thing Craig has created."
Jun 6, 2012

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I am a brain injury Survivor, Family/Caregiver or professional
Family Caregiver

TBI self-help to return to I.T. work?

Hi,

My partner has a very recent severe brain injury (42 days inpatient; 51 days until out of PTA) but is making great progress. Although he was injured whilst working in another area entirely, his passion was content-managing his website which has multi-authors and is very popular in Australia. The other authors maintained the content, but not the management, while he was in hospital and still help a lot whilst he is in rehab as an out-patient twice a week. He had a long gap in IT employment after a couple of years working in IT programming research in a university due to problems with doctoral program competition and funding. He lost confidence but was building it up with self-funded non-profit work, whilst working in a cleaning job for past three years. Now he is being retrained for the semi-skilled occupation he happened to have had when the accident occurred, but he is trying hard to retrain himself in content management and to try and create a test-bed involving several computers at home. He is worried that if he goes back to the cleaning job, he won't have any energy to do anything he likes. He is trying to make his drupal content-managed web-site more structured, maintainable and able to be rebuilt should it be hacked. He is also trying to build mirror sites, but is having problems working out whether he needs to transmit the sites in total to the mirror on a daily basis or whether there is a way to simply update mysql as well as jpg content. This needs at home a physically secure test-bed computer, preferably a Linux computer, which he is currently trying to get together. I feel that what he needs is others with similar experience of TBI and of computers who might like to form some mutual discussion and support for technical and TBI matters.

I am keen to link up and perhaps to link him up with others who may have returned to professional I.T. work, or be trying to do so.

I will also make contact with some locals who may give him some work experience.

He has scattered diffuse axonal damage focused in the left frontal subcortex, plus a query lesion in brain-stem (balance subtly off) and scattered diffuse axonal in corpus callosum, but he has a very big brain and lots left. His verbal memory is most affected and his processing is slow still (much faster in the morning). At the moment, of course (the accident was in mid-may this year 2010) his is still rather scattered, very weak, prone to terrible anxiety and insecurity, to put it mildly. He can also be quite focused and his continuous memory is building up better than I would have hoped. I love him a great deal and want to support him, but he does need to start interacting with and learning from others who have had the same experience so that he feels less of an outsider and can gain in self-esteem.

By the way, I am interested in some of the theories in the Brain that heals itself - what do others think?

QueenieAlexander

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At 11:18pm on September 14, 2010, John Spencer said…
Thank you for the welcome. I have come a long way in recovery and feel good to know that I am capable of remembering so many things and checking back with this site seems to be one of those neat little things. Life is Good. Peace
 
 
 

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