"I have not heard of Craig Sicilia's Brain Injury Radio. I am still trying to figure out TBISN. It appears so disorganized to me. These radio channels frustrate me because they do not offer text/transcriptions. Limiting everything to auditory…"
"Marti, I am Maureen and like you all of my family left me too. I am looking now for a place to live. I don't know where you live but I don't have transportation where I live, that is Minneola, Clermont area so I haven't…"
Thank you for reaching out to me. Please let me know if I can be of service to you. I am available to be of service.
Have a pleasant and rewarding Memorial Day weekend and God bless both you and your family Maureen.
" Hi Marie-Terese, it has been a long time since we have spoken. I haven't been doing very good lately and I am asking you if you might give me a few idea's about getting someone that might be able to help me with my Medicaid…"
"I HOPE EVERYONE WILL HAVE TIME TO READ WHAT I JUST WROTE TO AGNES IN FINLAND.....IF YOU ARE FEELING VERY BAD TODAY, BELIEVE ME THING'S WILL GET BETTER. TODAY IS ONE OF MY BETTER DAY'S AND YES I DO HAVE SOME DAY'S THAT AREN'T AS…"
"Hello Agnes Buskirk, how are you doing today in Finland? My first name is Maureen but I am usually called Moe by my husband and friend's, so feel free to call me Moe Agnes OK? Tell me a little bit about Finland, what other Countries or…"
"Hi Marie-Terese, I wish I could go online more but because of the pain in my right optic nerve the pain is just so bad that I can't stay on here as long as I would like to. I am going to look and see if there is a picture of me on a file here.…"
I have not heard of Craig Sicilia's Brain Injury Radio. I am still trying to figure out TBISN. It appears so disorganized to me. These radio channels frustrate me because they do not offer text/transcriptions. Limiting everything to auditory without any text/chat/IM backup is counter to the needs of many with TBI. I connect primarily with the Post Concussion Syndrome online community except for my local TBI Support Group.
Hope this finds you smiling.
Okay, I am not quite sure who at BIRC you are trying to get ahold of but Mary Doyle is out on medical leave. I would suggest that you call and speak with the out patient nurse. Sorry her name slips through the cracks of my brain. But they are excellent people willing to assist you. Okay the number let me see 321-287-5508. This is Mary Doyle number so you might have to connect with the main numbers for ORHS. Good Luck let me know how it goes. Okay what else did you need assistance with. I hope that you are able to attend the orlando brain injury support group meetings. We have our officers elections in April and I would really like to get more people involved. Look forward to communication with you. Hope you are doing good. Sincerely, Marie-Terese
Hi Maureen, Thanks for the email, I don't fully understand TBI no one does, we have had some talk about changing the name to brain injury survivors network, In time to come We will have to see what people want, thats what I wan't I want all services to be what survivors want and need not what doctor and lawyers want for us. I know there are many type of brain injuries and some last a life time, I do believe we can learn to compensate for our disabilities.
A little about me, I have been invovlved in people first www.peoplefirstofwashington.org and have worked with folks with disabilities for a while, I always have wanted what they wanted, I was involved in a movement called people first language which is now a law. We want to be seen as a person first and everything else is second. There are still people in institutions because of how funding has been, people first fought for money follows the person to get them living in the community. I believe everyone deserves equaty in life to reach their dreams what ever they may be. Every area is different with different needs,
so what kind of changes would you like to see, i dont like being called brain injured but its what it is, But i do want people to see me for me not for my injury.
I will put more thought into your email and give a better reply, I so want to learn everyones ideas and share them I think together we can change our world into a better place for everyone.
Hope all is well.
I just learned how to put up a picture of myself not that hard.
Do you have a digital picture of yourself?
If not come to the next meeting and we will take a picture of your beautiful self.
This is a great way to communicate with you all.
Sincerelybr /> MT
"I feel for you Monica. I have learned enough that it is not an easy road after a BI. Hopefully he will recover but it has only been 4 months. He is early in his recovery. Take care and will help where I can. "
As always you are spot on..... W the advice you have gave me prior and now. Her needing her space....ya I know at times she does. She has done this all before. She has mentioned at times how she likes her…"
"Hello, my son was in a dirt bike accident Aug 8, 2013. He got out of his coma Sept 11. To this day he is still unconscious. He does have sleep/wake cycles. He can follow commands like wiggle your toe or squeeze my hand. …"
I have been thinking about all you said. The problem is I really dont know where to start or where to end w all you posted. There are so many things i can comment on.
No, when she leaves, she never gives me a…"
This is such good information and insight. It really helps me understand some behaviors that did not make sense to me previously. The idea that Bryon's lady friend leaves because she needs the rest makes sense.