Lisa Collins
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  • Akron, OH
  • United States
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Question...Idea About Help with SSD Process
4 Replies

I have an idea and I think it could work. A few weeks ago, I posted about my frustration with trying to get my SSD approved and the fact that I "look" normal and can speak eloquently. Many of you…Continue

Started this discussion. Last reply by jaryd winslow Dec 27, 2012.

TBI Radio
2 Replies

Would you ever consider moving TBI Radio to an earlier time? I'm in the Eastern time zone and due to some of my medical issues, 10PM is usually after my bedtime. I listen to the archives, but can't…Continue

Started this discussion. Last reply by Lisa Collins Nov 16, 2011.

Having an Incredibly Difficult Time with SSD
33 Replies

As of this coming Friday (10/28) I am three years out from my accident. My TBI includes damage in several areas of the brain, but what I struggle most with is executive functions. While I was a very…Continue

Started this discussion. Last reply by wendy renzulla-heitkamp Dec 14, 2011.

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Latest Activity

jaryd winslow replied to Lisa Collins's discussion Question...Idea About Help with SSD Process
"The system is difficult BECAUSE there are so many people out there cheating it, NOT the other way around. As most people know, Getting SSI or SSDI is a long process; you ALWAYS get turned down the first two times, many the third, and it is not until…"
Dec 27, 2012
David W Lloyd replied to Lisa Collins's discussion Question...Idea About Help with SSD Process
"I can write eloquently because I can proofread, but even that does not help me every time, because sometimes an inappropriate word choice seems "normal" to me when I proofread. However, I found an online grammar checker that…"
Dec 26, 2012
wendy renzulla-heitkamp replied to Lisa Collins's discussion Having an Incredibly Difficult Time with SSD
"please find a better attorney specializing in ssd will be much quicker"
Dec 14, 2011
Lisa Collins replied to Lisa Collins's discussion Having an Incredibly Difficult Time with SSD
"Thanks again all. Cheryl, those are some wonderful (though unfortunate) stats and I will use them. "
Dec 13, 2011
Cheryl Green replied to Lisa Collins's discussion Having an Incredibly Difficult Time with SSD
"1. http://www.cdc.gov/traumaticbraininjury/severe.html This post from the CDC mentions that 43% of people are disabled after severe TBI. That's a large percentage. 2. http://www.biausa.org/tbims-articles.htm From Brain Injury Association of…"
Dec 13, 2011
Ricky w mullins replied to Lisa Collins's discussion Having an Incredibly Difficult Time with SSD
"DO YOU HAVE A LAWYER ? SS PAYS HIM , YOU DONT , NOTHING WENT GOOD FOR ME TILL I GOT A LAWYER , GOD BLESS KEEP GOING "
Dec 13, 2011
Cheryl Green replied to Lisa Collins's discussion Having an Incredibly Difficult Time with SSD
"Ok, so the fact that yours was NOT mild, Lisa, only further proves the point that discrimination is going on. Arg. I have heard about this before, someone with a significant bleed showing up on CT right after the injury, and then a year later when…"
Dec 9, 2011
Debbie Gibbons replied to Lisa Collins's discussion Having an Incredibly Difficult Time with SSD
Dec 9, 2011
Debbie Gibbons replied to Lisa Collins's discussion Having an Incredibly Difficult Time with SSD
"ok, here is another point. in court i found out that the insurance company's attorney can lie about us to see if we are faking it. Really, that is torture, and reason for breakdown and most mis-understood by non brain injured people, as we are…"
Dec 9, 2011
Lisa Collins replied to Lisa Collins's discussion Having an Incredibly Difficult Time with SSD
"Mary and Cheryl, thanks for the great points and more food for thought. Seems like there are some patterns here. FYI, I was in the hospital more than four weeks and they missed a pretty significant problem with my cervical spinal chord. My TBI…"
Dec 9, 2011
Debbie Gibbons replied to Lisa Collins's discussion Having an Incredibly Difficult Time with SSD
"Exactly my story. We need to do more in this area, sharing more of our details, but also documenting key areas.  "
Dec 9, 2011
mary lutz replied to Lisa Collins's discussion Having an Incredibly Difficult Time with SSD
"I can relate to what you are saying Cheryl. The emergency room sends you home and tells you to come back if you get worse?? worse in what way?? They tell you to expect a headache for a few days, etc. I was all banged up so a couple of days later in…"
Dec 9, 2011
Cheryl Green replied to Lisa Collins's discussion Having an Incredibly Difficult Time with SSD
"It's those of us who had "mild" brain injuries who cannot convince people that our ability to work has gone down or gone away. I'm on my 6th mTBI as an adult, and we're not counting childhood bike wrecks with no helmet. And…"
Dec 9, 2011
Glen Brist replied to Lisa Collins's discussion Having an Incredibly Difficult Time with SSD
"Lisa,   I am  way  behind  on  this   discussion,   but   hope  all  goes  well   for  you....  I  had  no  trouble  getting  on   SSD,    but  I  do  have  to   fill  out  a   form  today,  to  take  me  off  of   Medicare  B,  as  my …"
Dec 9, 2011
Cheryl Green replied to Lisa Collins's discussion Having an Incredibly Difficult Time with SSD
"Nah, I've never heard of it being used in actual medical practice, only research. But it's been used in research for several years, and I thought there was maybe a chance it was out there. Also, I was having a really exceptionally awful…"
Dec 5, 2011
mary lutz replied to Lisa Collins's discussion Having an Incredibly Difficult Time with SSD
"Cheryl, I am sorry that you are experienceing the same.  As far as diffuse tensor imaging, in 2009, my psychologist that did testing wanted me to have it for proof, however, it was still not widely accepted. My lawyer would not approve the cost…"
Dec 5, 2011

Profile Information

I am a brain injury Survivor, Family/Caregiver or professional
Survivor
What do you find most difficult living with a brain injury
Where I once had a successful career and life, today I feel lost and without purpose. I'm struggling to create a road map, not only for the future but for tomorrow, the next day, the next week. I'm interested in the stories of others and potential resources.
are you on another social network such as facebook, so we can varify your a real person trying to apply
...people don't understand TBI. I think it will help me to be able to communicate with some people who truly understand.

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At 7:55pm on November 13, 2011, phil espinoza said…

HI LISA, ANY LUCK WITH THE SSD?  JUST WONDERING....

At 10:01am on October 27, 2011, phil espinoza said…

I think alot of the complexities of TBI is that the actual damage the person experiences is not "visually evident"  yOU know...like someone who is missing a leg, or something....People judge very quickly by appearances.  They just "don't see" the damage we may complaint about...so, we have to basically give them a "long description" and a "class" on the brain....I've been doing this so long since my accident in 2008, I feel like I'm giving a class and Lecture on TBI...

 

 
 
 

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