Comment

Comment by Debi on November 5, 2010 at 1:06pm

When we talk about educating the profession field...I find that the task is an undertaking. The reason I say that is because, when I was released from the hospital after my accident....I had no information given to me or my family in reference to the head trauma I received. I had no brochure stating information on which to watch for, what should be done if symptoms are present and so on. Only through my lawyer handling my accident case, was I made aware that their was such a thing as a neuropsychologist for head trauma as mine. Needless, to say, just the lack of information alone disgusts me. So many more different outcomes for people suffering from TBI can be avoided given the information on all aspects of TBI from simple information, to specialist and life after TBI. It is a mountain, not a hill, to climb and I am more than willing to climb that mountain. Enough is enough and it is time for us to speak out as one and change and make a difference for the one's yet to follow in our footsteps, unfortunately. Blessings...

Comment by Steffanie (Cole) Siefker on November 2, 2010 at 1:35pm

Tom, you couldn't be more correct about the "we need to educate the medical community." My PCP is so much smarter about head trauma becuase of me- then again, I really know my stuff after 23 years so that gives him an edge....

Comment by Abbie Clayton on November 2, 2010 at 12:59pm

love what is here

Comment by Tom Tatlock on October 19, 2010 at 8:56pm

Here are 2 links to resources to use in educating the professionals who see us, the persons who have sustained a TBI.

Podcasts: Assisting Patients with Traumatic Brain Injury: A Brief Guide for Primary Care Physicians

This series of four podcast modules is designed to inform primary healthcare professionals, who are not specialists in traumatic brain injury (TBI), about the healthcare and community reintegration needs of persons with TBI.
Topics covered in these modules include:
1. The basics of TBI (Module 1),
2. Diagnostic issues and using neuropsychological reports (Module 2),
3. Co-morbid emotional and behavioral conditions of TBI (Module 3), and
4. Strategies for and modifications to primary care clinical practice to effectively accommodate persons with TBI (Module 4).

Podcast # 4 highlights some needed accommodations


http://www.tbicommunity.org/resources/podcasts/index.htm

JOURNAL OF NEUROTRAUMA 27:1529–1540 (August 2010) a Mary Ann Liebert, Inc. DOI: 10.1089/neu.2010.1358

Traumatic Brain Injury: A Disease Process, Not an Event

Brent E. Masel1 and Douglas S. DeWitt2

http://www.liebertonline.com/doi/pdfplus/10.1089/neu.2010.1358


I believe that we, the persons who have sustained a TBI, and our families need to educate the medical community and other professionals directly.

Comment by Suzanne A. Griffin on October 8, 2010 at 4:11pm

Steffanie,

I hear you. I was just asking if you helped to inspire the young children who come in and show how having a TBI to the parents does not mean we will not amount to anything. Show them the hope and how we persevere and are not what happened to us. As I grew up knowing no other way than living with a brain injury, my first skull fracture came at 3 months old.

Comment by Steffanie (Cole) Siefker on October 8, 2010 at 2:55pm

Suzanne, I am a survivor of a horrific TBI with brain surgery including frontal-temperol lobectomy. I am 23 years post and for the last 6 years I have been reading and researching everything on Brain Injury. I have been putting my face out there, firtst the paper, then speaking engadgements, and I was nominated and voted to be on the Board of Directors for the BIAMI. As far as peer counselor, I do not have a degree, however I know more neuroantomy, neurosphysiology, tbi psychology, neuropharmacology than any graduating med student and most general MD's. I also have 23 years of living, that really gives me an edge.

Comment by Suzanne A. Griffin on October 8, 2010 at 2:09pm

Welcome Richard, Does your association have a CD that they put out to the public to help bring awarness? Do the differant counties join in and have Proclamations for Brain Injury Awareness Month?

Comment by Richard J on October 8, 2010 at 12:11pm

I think I should become a member for this group as I'm now working with the MN brain injury association.

Comment by Suzanne A. Griffin on October 8, 2010 at 9:48am

Has anyone had a Conferance or Dinner Auction Gala with the Brain Injury Association of their state? I will be going to one on the 9th, should have some good information.

Comment by Suzanne A. Griffin on October 8, 2010 at 9:42am

Steffanie,

Do you work as a Peer Counselor for TBI survivors? I would love to becomce one for childen, since my first TBI came as a result as a Skull Fracture at 3 months old and I knew no other way of life but with brain injuries. (That was a accident)

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