Brain Injury Public Policy Advocacy Group

Information

Website: http://tbisurvivorsnetwork.ning.com/events/wa-brain-injury-public-policy-advocacy-group
Location: Meet monthly on goto meetings ask for your invite
Members: 79
Latest Activity: Mar 7

Disability Rights

Penny Condoll, Craig Sicilia, and Mark Stroh started a conversation the other day that we would now like to invite others to join. We were talking about ways to increase the influence of people with disabilities with the Washington Legislature and the entities that are charged with providing supports and services to people with disabilities. We were noting a couple of things. First, several disability communities seem to be significantly underrepresented in Olympia when policies and funding levels are being decided. Second, we need to find better ways of holding service and support providers accountable. We are thinking it is not enough just have the opportunity to speak. We want the participation of people with disabilities to make a difference in the way supports and services are provided.

Because these three believe so strongly in individuals being in charge of their advocacy direction ("nothing about us without us"), there are many paths this advocacy committee may take. A couple initial ideas include:

· Focus on increasing participation in the mental health and traumatic brain injury communities – two groups that could need to dramatically increase their presence in Olympia.

· Focus on increasing participation and cross collaboration in disability communities that have similar needs, such as cognitive, neurological, and mental health which we feel are also underrepresented.

· Create an open cross disability focus on specific outcomes. An example might be a committee that has a special focus of increasing chore hours for undeserved disability communities or improving transportation services for individuals with disabilities.

We decided that that was a decision for a larger group. We are inviting you as you have demonstrated a desire to make a difference in the support and services of people whose lives are affected by a disability.

So we decided to expand our group somewhat and continue the conversation. We’re holding a conference call for that purpose on October 7 from 11:00 to 1:00 for that purpose. We hope you will join us.

Agenda:

· Introductions of those participating on the call

· The purpose of the call (Penny and/or Craig)

· Discussion: What direction do we want this advocacy effort to take?

· Discussion: Who do we want to be a part of this effort?

· Discussion: Next Steps

Discussion Forum

What do we need most? "Essential Services" - post rehab 9 Replies

For most of us when we arrive home after rehab,(if we were lucky enough to have been able to receive rehab services) we find our selves left to figure it out on our own.What types…Continue

Started by Marih Alyn-Claire. Last reply by Barbara Castlow Sep 4, 2012.

Worker comp

I was hurt performing worker related duties. June 3 04. I was not tested or treated. An attorney reading my injury accident report asked one ?. Were u sent to a neurologist. I wasn't. It was…Continue

Started by deborah clonch-elliott Mar 16, 2012.

Flying with a brain injury 5 Replies

I recently learned the very hard way about some details regarding flying when you have an invisible disability. Every airline in the US interprets the law differently, but let me pass on what I have…Continue

Tags: legislation, disabled, travelers', rights, federal

Started by Cheryl Green. Last reply by Cheryl Green Jan 27, 2012.

Legal help 1 Reply

Hello everyone!I could use some assistance.My TBI and partial paralysis was caused by a medication that I was taking; my Physical /therapists recommended that I sue for damages, lost job, lost home,…Continue

Started by Becca Dixon. Last reply by stephen d. cunningham Dec 26, 2011.

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Comment Wall

Comment

You need to be a member of Brain Injury Public Policy Advocacy Group to add comments!

Comment by Queenie Alexander on June 11, 2012 at 8:16pm: Hi all,

Thanks for inviting me to join this group. I am currently focused on writing a book about my partner's brain injury because I think that it covers areas not previously covered, notably, the kinds of difficulties a software engineer with massive brain injury meets trying to use computers again. Plus, my experience as a psych nurse and as a sociologist are helpful in interpreting what happens from the first day in hospital to rehab and after. So, just letting you know that I am pretty busy, but I am interested in this area and will try to contribute later. Also I am Australian, but I think that we still face much in common,

best

Comment by Craig Sears on February 26, 2012 at 1:29pm: Come and join us. The Sarah Jane Brain Foundation Launches Brain Injury Awareness Month on March 1st

by cordially inviting you to attend a special screening of
CNN’s Dr. Sanjay Gupta Reports’ documentary

“Big Hits, Broken Dreams”
The program explores concussions in high school football by following four-time North Carolina state champions JH Rose football team for the 2011 season

Preceded by Sp...ecial Remarks from
Congressman Leonard Lance
Immediately followed by a panel discussion featuring

A.J. Flores
Former J.H. Rose starting quarterback featured in Dr. Gupta’s documentary

Tracy Yatsko
Former Pennsylvania High School star athlete and current Program Director of Atalanta’s Pride
(the First Women’s Concussion Program)

Josh Morros
Former Off-Road Motocross Racing professional (youngest in history) and Founder of Because I
Can Ride Foundation

Along with national experts detailing the latest efforts in the
PREVENTION of youth sports concussions
Tom Grady – New Jersey Brain Injury Alliance

IDENTIFICATION of youth sports concussions
Jason Cooner – Archetype, Inc.

TREATMENT of youth sports concussions
Dr. Victor Pedro – Cortical Integrative Therapy

Moderated by Dr. Peter Patrick – Pediatric Neuropsychologist

Thursday, March 1, 2012
1:30-3:30 p.m.

2456 Rayburn House Office Building
Washington, D.C.

please RSVP to Matt Molloy (212) 576-1161 matt@thebrainproject.org

Comment by Shonti Ganguli on December 19, 2011 at 5:34am: Yes we need a voice. And together we have a better chance of being heard. Creating new pathways that work for us and having society give us the opportunity to work within our capacity. And to understand our individual needs for down time. I am hoping to help us be heard.

Comment by Pablo on December 17, 2011 at 9:37am: when is the next meeting

Comment by Goth Girl on November 4, 2011 at 3:48pm: you are an amazing man

Comment by Rodney Barnes on October 23, 2011 at 12:35pm: Hey everyone! Just to give you some info about me, I survived a major TBI, coma, and had to relearn everything over again when I was 21... About 18 years after my accident I wrote, published, and built a website http:SharingMiracles.net... PLEASE, check out my website and become a member and start discussions on the LINK "SharingYourMiracle." THANKS Craig for all your doing brother..... Take care everyone, Peace. Rodney Lee

Comment by Jon on October 23, 2011 at 9:52am: we have lots to talk about and to fight for we need change

Comment by Ruth on October 15, 2011 at 8:46am: what a great group to bring change

Comment by Carol on October 14, 2011 at 7:44am: in the tough times coming we need to figure out what we need most

Comment by TBI Survivors Network on September 29, 2011 at 4:53pm: Budget cuts coming soon, get organized get active our lives depend on it

Washington Town Halls

TOWN HALL MEETINGS

Tuesday, September 27                                TACOMA

1:00 p.m. – 2:00 p.m.                      Region 3 staff meeting

                                                                Centennial Building, Room 406

                                                                2121 South State Street

                                                                Tacoma, WA 98405

3:00 p.m. – 5:00 p.m.                      Community meeting

                                                                Catholic Community Services

                                                                Alberta Canada Room (3^rd Floor)

                                                                1323 Yakima Avenue

                                                                Tacoma, WA 98405

Thursday, September 29              YAKIMA

12:00 p.m. – 1:00 p.m.                    Region 1 Staff Meeting

                                                                1002 N. 16^th Avenue – 2^nd Floor – Conference Room 5

Yakima, WA 98902

1:30 p.m. – 3:30 p.m.                      Community Meeting

1002 N. 16^th Avenue – 2^nd Floor – Conference Room 5

Yakima, WA 98902

Thursday, October 6                       EVERETT

1:00 p.m. – 2:00 p.m.                     Region 2 Staff Meeting

                                                                840 North Broadway

                                                                Room 103

                                                                Everett, WA   98201

2:30 p.m. – 4:00 p.m.                     Community Meeting

                                                                840 North Broadway

                                                                Room 103

                                                                Everett, WA 98201

Monday, October 17                      VANCOUVER

12:30 p.m. – 2:30 p.m.                    Community Meeting

                                                                Public Service Center

                                                                Elections Room

                                                                2^nd Floor, Room 226

                                                                1408 Franklin Street

                                                                Vancouver, WA 98666

3:00 p.m. – 4:00 p.m.                      Region 3 Staff Meeting

                                                                DCS Conference Room

                                                                5411 East Mill Plain Blvd

                                                                Bldg 3

                                                                Vancouver, WA 98661

Wednesday, October 19                               SPOKANE

4:00 p.m. – 5:00 p.m.                      Region 1 Staff Meeting

                                                    8517 E. Trent Avenue, Rockford Room (Main Floor – Suite 101)

Spokane, WA 99213

5:30 p.m. – 7:30 p.m.                      Community Meeting

                                                                8517 E. Trent Avenue, Rockford Room (Main Floor – Suite 101)

Spokane, WA 99213

Wednesday, October 26                               SEATTLE

1:00 p.m. – 2:00 p.m.                      Region 2 Staff Meeting

                                                                3600 South Graham Street

                                                                Graham Room

                                                                Seattle, WA 98188

2:30 p.m. – 4:00 p.m.                      Community Meeting

                                                                3600 South Graham Street

                                                                Graham Room

                                                                Seattle, WA 98188