connecting the world one survivors at a time
Brain Injury Public Policy Advocacy Group
Information
Website: http://tbisurvivorsnetwork.ning.com/events/wa-brain-injury-public-policy-advocacy-group
Location: Meet monthly on goto meetings ask for your invite
Members: 79
Latest Activity: Mar 7
Disability Rights
Penny Condoll, Craig Sicilia, and Mark Stroh started a conversation the other day that we would now like to invite others to join. We were talking about ways to increase the influence of people with disabilities with the Washington Legislature and the entities that are charged with providing supports and services to people with disabilities. We were noting a couple of things. First, several disability communities seem to be significantly underrepresented in Olympia when policies and funding levels are being decided. Second, we need to find better ways of holding service and support providers accountable. We are thinking it is not enough just have the opportunity to speak. We want the participation of people with disabilities to make a difference in the way supports and services are provided.
Because these three believe so strongly in individuals being in charge of their advocacy direction ("nothing about us without us"), there are many paths this advocacy committee may take. A couple initial ideas include:
· Focus on increasing participation in the mental health and traumatic brain injury communities – two groups that could need to dramatically increase their presence in Olympia.
· Focus on increasing participation and cross collaboration in disability communities that have similar needs, such as cognitive, neurological, and mental health which we feel are also underrepresented.
· Create an open cross disability focus on specific outcomes. An example might be a committee that has a special focus of increasing chore hours for undeserved disability communities or improving transportation services for individuals with disabilities.
We decided that that was a decision for a larger group. We are inviting you as you have demonstrated a desire to make a difference in the support and services of people whose lives are affected by a disability.
So we decided to expand our group somewhat and continue the conversation. We’re holding a conference call for that purpose on October 7 from 11:00 to 1:00 for that purpose. We hope you will join us.
Agenda:
· Introductions of those participating on the call
· The purpose of the call (Penny and/or Craig)
· Discussion: What direction do we want this advocacy effort to take?
· Discussion: Who do we want to be a part of this effort?
· Discussion: Next Steps
Discussion Forum
What do we need most? "Essential Services" - post rehab 9 Replies
For most of us when we arrive home after rehab,(if we were lucky enough to have been able to receive rehab services) we find our selves left to figure it out on our own.What types…Continue
Started by Marih Alyn-Claire. Last reply by Barbara Castlow Sep 4, 2012.
Worker comp
I was hurt performing worker related duties. June 3 04. I was not tested or treated. An attorney reading my injury accident report asked one ?. Were u sent to a neurologist. I wasn't. It was…Continue
Started by deborah clonch-elliott Mar 16, 2012.
Flying with a brain injury 5 Replies
I recently learned the very hard way about some details regarding flying when you have an invisible disability. Every airline in the US interprets the law differently, but let me pass on what I have…Continue
Tags: legislation, disabled, travelers', rights, federal
Started by Cheryl Green. Last reply by Cheryl Green Jan 27, 2012.
Legal help 1 Reply
Hello everyone!I could use some assistance.My TBI and partial paralysis was caused by a medication that I was taking; my Physical /therapists recommended that I sue for damages, lost job, lost home,…Continue
Started by Becca Dixon. Last reply by stephen d. cunningham Dec 26, 2011.
Comment Wall
Comment
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Comment by Queenie Alexander on June 11, 2012 at 8:16pm -
Hi all,
Thanks for inviting me to join this group. I am currently focused on writing a book about my partner's brain injury because I think that it covers areas not previously covered, notably, the kinds of difficulties a software engineer with massive brain injury meets trying to use computers again. Plus, my experience as a psych nurse and as a sociologist are helpful in interpreting what happens from the first day in hospital to rehab and after. So, just letting you know that I am pretty busy, but I am interested in this area and will try to contribute later. Also I am Australian, but I think that we still face much in common,
best
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Comment by Craig Sears on February 26, 2012 at 1:29pm
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Come and join us. The Sarah Jane Brain Foundation Launches Brain Injury Awareness Month on March 1st
by cordially inviting you to attend a special screening of
CNN’s Dr. Sanjay Gupta Reports’ documentary
“Big Hits, Broken Dreams”
The program explores concussions in high school football by following four-time North Carolina state champions JH Rose football team for the 2011 season
Preceded by Sp...ecial Remarks from
Congressman Leonard Lance
Immediately followed by a panel discussion featuring
A.J. Flores
Former J.H. Rose starting quarterback featured in Dr. Gupta’s documentary
Tracy Yatsko
Former Pennsylvania High School star athlete and current Program Director of Atalanta’s Pride
(the First Women’s Concussion Program)
Josh Morros
Former Off-Road Motocross Racing professional (youngest in history) and Founder of Because I
Can Ride Foundation
Along with national experts detailing the latest efforts in the
PREVENTION of youth sports concussions
Tom Grady – New Jersey Brain Injury Alliance
IDENTIFICATION of youth sports concussions
Jason Cooner – Archetype, Inc.
TREATMENT of youth sports concussions
Dr. Victor Pedro – Cortical Integrative Therapy
Moderated by Dr. Peter Patrick – Pediatric Neuropsychologist
Thursday, March 1, 2012
1:30-3:30 p.m.
2456 Rayburn House Office Building
Washington, D.C.
please RSVP to Matt Molloy (212) 576-1161 matt@thebrainproject.org
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Comment by Shonti Ganguli on December 19, 2011 at 5:34am
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Yes we need a voice. And together we have a better chance of being heard. Creating new pathways that work for us and having society give us the opportunity to work within our capacity. And to understand our individual needs for down time. I am hoping to help us be heard.
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Comment by Pablo on December 17, 2011 at 9:37am
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when is the next meeting
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Comment by Goth Girl on November 4, 2011 at 3:48pm -
you are an amazing man
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Comment by Rodney Barnes on October 23, 2011 at 12:35pm -
Hey everyone! Just to give you some info about me, I survived a major TBI, coma, and had to relearn everything over again when I was 21... About 18 years after my accident I wrote, published, and built a website http:SharingMiracles.net... PLEASE, check out my website and become a member and start discussions on the LINK "SharingYourMiracle." THANKS Craig for all your doing brother..... Take care everyone, Peace. Rodney Lee
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Comment by Jon on October 23, 2011 at 9:52am -
we have lots to talk about and to fight for we need change
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Comment by Ruth on October 15, 2011 at 8:46am -
what a great group to bring change
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Comment by Carol on October 14, 2011 at 7:44am
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in the tough times coming we need to figure out what we need most
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Comment by TBI Survivors Network on September 29, 2011 at 4:53pm -
Budget cuts coming soon, get organized get active our lives depend on it
Washington Town Halls
TOWN HALL MEETINGS
Tuesday, September 27 TACOMA
1:00 p.m. – 2:00 p.m. Region 3 staff meeting
Centennial Building, Room 406
2121 South State Street
Tacoma, WA 98405
3:00 p.m. – 5:00 p.m. Community meeting
Catholic Community Services
Alberta Canada Room (3rd Floor)
1323 Yakima Avenue
Tacoma, WA 98405
Thursday, September 29 YAKIMA
12:00 p.m. – 1:00 p.m. Region 1 Staff Meeting
1002 N. 16th Avenue – 2nd Floor – Conference Room 5
Yakima, WA 98902
1:30 p.m. – 3:30 p.m. Community Meeting
1002 N. 16th Avenue – 2nd Floor – Conference Room 5
Yakima, WA 98902
Thursday, October 6 EVERETT
1:00 p.m. – 2:00 p.m. Region 2 Staff Meeting
840 North Broadway
Room 103
Everett, WA 98201
2:30 p.m. – 4:00 p.m. Community Meeting
840 North Broadway
Room 103
Everett, WA 98201
Monday, October 17 VANCOUVER
12:30 p.m. – 2:30 p.m. Community Meeting
Public Service Center
Elections Room
2nd Floor, Room 226
1408 Franklin Street
Vancouver, WA 98666
3:00 p.m. – 4:00 p.m. Region 3 Staff Meeting
DCS Conference Room
5411 East Mill Plain Blvd
Bldg 3
Vancouver, WA 98661
Wednesday, October 19 SPOKANE
4:00 p.m. – 5:00 p.m. Region 1 Staff Meeting
8517 E. Trent Avenue, Rockford Room (Main Floor – Suite 101)
Spokane, WA 99213
5:30 p.m. – 7:30 p.m. Community Meeting
8517 E. Trent Avenue, Rockford Room (Main Floor – Suite 101)
Spokane, WA 99213
Wednesday, October 26 SEATTLE
1:00 p.m. – 2:00 p.m. Region 2 Staff Meeting
3600 South Graham Street
Graham Room
Seattle, WA 98188
2:30 p.m. – 4:00 p.m. Community Meeting
3600 South Graham Street
Graham Room
Seattle, WA 98188
Coming Soon
Events
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Spokane County Brain Injury Group - Wed April 24 - 630 PM
April 24, 2013 at 6:30pm to August 28, 2013 at 8:15pm – St Lukes rehab
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Washington State TBI Conference
May 23, 2013 at 8am to May 24, 2013 at 4pm – Seatac marriot
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LIVE CHAT - Every Night 7PM Pacific
May 31, 2013 at 7:15pm to June 24, 2013 at 10:15pm – EVERYWHERE
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