What happened? What was your thinking process? What was it that finally let you become okay with the new person you are? What realization did you make?
The reason I ask, is because somebody dear to me is struggling mightily with her TBI. Megan is 4 years out and feels her life is hopeless and she will never get better. She doesn't know who she is anymore and doesn't know what to do with her life. She has not accepted herself yet, she is depressed.
So if you could tell your own story of how you finally became at peace with yourself, I would like to show it to Megan. I want to show her that she can be happy again and that things will get better. She needs to hear that it's been done before. She needs hope.
Ty
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Permalink Reply by Richard J on February 9, 2012 at 10:03am Megan, of course you are a "new" person but you will get better. Everyday is a new day. What was my thinking process? I just thought "OK, wake up and start over again." I was tired of thinking "what if, what if, what if". I didn't like sitting around with nothing to do, I didn't like where I was going, so I started a "new" hobby (playing a mandolin), that I thought about before my injury, and it's fun ... I'm not very good at, but it's still fun and will amuse and even amaze me when I do it perfectly. Most of the time I play only for my amusement, but there's a music store (about 45 minutes away) that has jam sessions every Thursday night, and I go whenever I can. I also started to volunteer in a place to help serve lunch to the homeless. At first all I did was welcome people in, then helping staff help up during & after lunch, then started to serve as well. It was not so much fun when I started, but after a couple of weeks I looked forwarded to it.
Regardless of where I am, I see people everywhere, many much older, some needing much more care (or help), some just needs to talk to somebody else, and it tells me I could be worse. Keep faith in yourself, you will be you.
Permalink Reply by Geo Gosling on February 24, 2012 at 4:58pm Well, You don't have much choice really. I mean you either kill yourself or accept yourself. What else can you do? Nothing really. I do not recommend killing yourself. Repeat: I do not recommend killing yourself. I was suicidal for years, but didn't do it, obviously. I figured with my luck, I'd attempt suicide, fail, and end up worse off than I was. Plus, I hate pain and suicide sounded like it could be painful. Now I am glad I was such a wuss. You just have to figure out what you can and cannot do now. Trial and error is the method I used, and still do use. This will probably depress you but...4 years out is nothing. 4 years after I suffered my TBI, I was depressed, pissed-off, I hated anything, everything, and everyone. There was and endless list of things I couldn't do anymore. That list is still way too long, and always will be, but it has gotten shorter and the list of things I can do now and like doing is getting longer and longer. You're going to hate me for saying this but it's the truth: It just takes time. You are in it for the long haul.
I didn't like writing before I suffered my TBI. I thought it was for nerds, stuffy old men, and psuedo-intellectual women. Now I enjoy it. I have written two books about the TBI I suffered. I think I told you this before but I am not positive and I think Megan would enjoy them; so I'm telling you again. Here are the two books I've written:
Click here for My first book: "TBI Hell - A Traumatic Brain Injury ...
Click here for my second book: "TBI Purgatory - Comes After Being I...
On iTunes:
On Google eBooks:
TBI Purgatory on Google eBooks
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Permalink Reply by Glen Brist on February 26, 2012 at 3:10pm Ty, that is a very good question.... I look back and it seems to me that my greatest help came from the hospital rehab.... after i woke up, I really never was given a chance to realize all my incapacities, seems i was as a babe and responded to the care and "love" of rehab...I have had others, (family) that have a hard time accepting and understanding my "moods" and fatigue, and it is frustrating, but most of all I have found new (family) & friends, by volunteering at the hospital... I feel at home around the people there.... Happiness doesn't necessary come from the same old situations and conditions.. sometimes being around others that are "worse off " (poor choice of words) physically, can help one see , and reach out and help them, thus feeling rewarded within..... It also helped me to read the books, "Over my head " and the "mango" princess" ,, they kind of let me know it could have been worse... and "they" both succeeded and did what they had to, enable to continue with life.... I will be thinking of you and Megan, and wishing you hope and best wishes....

Permalink Reply by BARB GEORGE on February 27, 2012 at 10:07am Hi Megan! Hi Ty!
The journey called TBI is not one I would wish on myself, or anyone...but it IS do-able. It isn't simple, but then, most things truly of worth, are NOT simple. It can be painful--if you are dealing with pain, I hope you are able to get it under control. It can be terribly depressing to wake each day with the knowledge that pain is 'right there' or 'right around the corner'.
One of the things I began a few years ago, was keeping an Accomplishment Log/journal. I realized that I probably would NOT remember what I had gotten DONE or checked off--so I keep a sort of 'log' on my calendar (this allowed me to not tote around so much stuff, but a regular journal would work too). I note my goals there-workout at gym, errands, if I cooked (took a long time for that one to come back.. some days I still just can't do much but hit the start button on the micro). My doctors also asked me to keep track of my really BAD headache days... This is where I did that (or um... tried to... when you feel bad it is tough). I STOPPED SHOULDING ON MYSELF. Do NOT 'should on yourself'. It does NOT help you.
Stay connected with people as much as you can. When we feel icky, we don't like to be around a lot of folks much. Tell the folks around you what you can and just can't do... For over 7 years, I just couldn't GO to a movie. I still can't--GO to one (unless it is an old black and white one without the fancy blue-ray stuff). But I CAN pop some corn and a netflix! I may not be able to spend a lot of money, cuz it ain't there any more (grin). But I CAN plop in a tureen of soup and some bread and ask folks by the house.
Build on what you can do now. Be grateful for the awesome FRIEND you are--since you have a great friend who wrote to this site, you MUST BE A WONDERFUL FRIEND IN RETURN!!!
HUGS TO YOU DEAR!
Permalink Reply by Glen Brist on February 27, 2012 at 9:05pm Well said, Barb ~ Ty this is all true....please read what I wrote to Mary, and then I read what Barb wrote and almost cried..... Things do not have to be the same as they were,,,, I too kept a log of things to do and things accomplished... but remember,,,,do not overload.... take a slow easy pace, one thing at a time.... there are still times when I do not like crowds also, but I do love people.... you and Megan were on my heart today.... I am getting tires so will just let you read what I wrote to Mary Lutz.... I truly mean it when I say , tbi people are the most special people in the world....hang in the, and love and care to you both, glen ( picture of my grand daughters , and the little critters that keep me busy...)

Permalink Reply by deborah clonch-elliott on March 18, 2012 at 5:27pm The most difficult part of brain trauma is not being able to explain it to my children. I've changed so much and family and long time friends don't know me anymore. The impulsiveness the out of character person I've become, and it's lonely because they can't accept me for the way I am now. I've been estranged from my past and the people I dearly love and miss with the exception of one of my daughters who took the time to get to know the new me. Its expressions of like being mystified at the dramatic changes, like I'm a very different person. but it's me... I'm still who I am and I can't help myself. I don't like it either. it is what it is. I don't get depressed but I grieve my losses and I'm not going to candy coat my response. I wouldn't wish this on my worst enemy as my tears pour down my face. And I won't apologize for not candy coating my response. I've stopped saying what I used to do. Its easier to say what i can do. i go to oblivion, the One word that describes tbi for me.
Permalink Reply by Michael Buckner on March 21, 2012 at 12:05pm Ty, the first thing I say to myself every morning I wake up is that today's a new day and not worry about yesterday. Megan should look at her life now as more of a gift and to enjoy it. I mean she could do something as simple as playing a game to divert her depression. Or you could get her involved in the park district for instance, I mean get her out and socialize. You could also contact your local library to see if they need any help that she could participate with. She also needs to feel needed. Get her to participate in the activities she enjoyed before her injury. Socialization is a big support measure, I believe, with TBI survivors. The only draw back is our loss of inhibitions, saying inappropriate words or phrases in public, but other than that get her out and socialize. Finally, if she's feeling depressed or upset with her life, change the subject. Start talking about what she enjoys or enjoyed, listen to her music, watch her favorite programs. Let her feel that she's still in control of her life.

Permalink Reply by BARB GEORGE on March 21, 2012 at 3:27pm I just want to remind you that while what Michael said about doing things she ENJOYED might be fun, be prepared that some of those things she may not be able to do any more. The different cognitive aspects of life can make it really hard, and you need to be prepared for that.
Permalink Reply by Geo Gosling on March 21, 2012 at 5:41pm That is very, very good advice. If I worried about yesterday, I be so depressed that I couldn't function.
Any sort of socialization is good. But you do have to watch what you say. I would say the first thing that popped into my head, and it usually wasn't what I should have said. Fortunately, I didn't get into any sort of trouble. But the only way to learn that is to go out and socialize. You just might meet someone that will be very good for you.
Keep your mind occupied...any way you can. Watch TV or DVD's (well not too much), read a book, play games (card, board, video, anything). Listen to music (I did a lot of that).
Volunteer somewhere. I volunteered at a local animal shelter. All I did was play with the little kittens. Then threw balls outside for the dogs. All critters need exercise, so it was good. Then I volunteered at the Vet's Home. Some of those old guys were hilarious. They couldn't do a lot of things they used to do, so I fit right in. The library is a good idea. There is a pretty good chance they have something you could do and you'll definitely socialize more.
Michael Buckner said:
Ty, the first thing I say to myself every morning I wake up is that today's a new day and not worry about yesterday. Megan should look at her life now as more of a gift and to enjoy it. I mean she could do something as simple as playing a game to divert her depression. Or you could get her involved in the park district for instance, I mean get her out and socialize. You could also contact your local library to see if they need any help that she could participate with. She also needs to feel needed. Get her to participate in the activities she enjoyed before her injury. Socialization is a big support measure, I believe, with TBI survivors. The only draw back is our loss of inhibitions, saying inappropriate words or phrases in public, but other than that get her out and socialize. Finally, if she's feeling depressed or upset with her life, change the subject. Start talking about what she enjoys or enjoyed, listen to her music, watch her favorite programs. Let her feel that she's still in control of her life.
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