Here is another question I have.  It is about new reactions to old sounds.

My partner liked dogs, but hated dog barking.  Since the TBI, however, he has developed a huge sensitivity to my dog's lip-smacking and self-cleaning, to the point where he has to leave the room; somehow the sound has become linked to something horrible.  He also finds a lot of music really distressing, although we have just discovered that he likes some music if it is very low, thank heavens, because I love music. 

I would like to know if others among you have experienced severe reactions to noises or music and, more than this, to know if any of you got over this.

He is, however, doing better and better on his return to content management for our net-site and beginning to work on real articles again; to think more deeply.

It occurred to me, from reading Norman Doig's The Brain that heals itself and Oliver Sack's Musicophilia (which is an amazing work I was familiar with before my partner's accident - in fact I have read all of Sachs's books)  that my partner's brain, whilst the neurons were dying in the week or two after the accident, decided to take over a lot of the musical and some other parts, and allocate them to the political and computer parts, which James probably would have prioritised.   My partner has also lost a lot of interest in films, books, tv, which could be due to loss of curiosity, but I wonder if it is more a way of saving his concentration for more important things, since he is only just beyond the immediate survival stage - and now trying to consolidate chances for long-term survival.

In this case I am hoping that these interests will come back to some extent.

So far a lot is coming back - thank heavens.


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sounds, noises and crowds cause me to go into seizures i have to be very careful and selective on where I go.. my interests have changed a lot I now like new things and some of the old things I don't care for anymore i became this new person which I am starting to be ok with good luck in your journey
Thanks for your response Aaron. I think there is a continuum from mild discomfort or changed feelings all the way up to seizures. I wonder how much sound sensitivity is linked to other emotions when a brain rewires itself. I am cheered to hear that you have found new interests and like yourself. You do sound like a nice person to me.

best,

Queenie

Aaron said:
sounds, noises and crowds cause me to go into seizures i have to be very careful and selective on where I go.. my interests have changed a lot I now like new things and some of the old things I don't care for anymore i became this new person which I am starting to be ok with good luck in your journey
I don't think noise or music is anything wrong for me, but how loud it is is a problem. I still love rock & roll or almost any kind of music, but I really prefer the songs and bands I knew before. My hobby is photography and a hobby so great I also teach adult-ed classes for photography. I have 4 rolls of film and 12 sheets of 4x5 film that I need to develop, but actually getting into my darkroom is much harder. Those films was been waiting for me for 6 weeks now, I guess I better get going. So, have I lost interest? I don't think so, but it seems that everything get's in the way. i prefer to call it self-preservation.

Queenie Alexander asked:  I would like to know if others among you have experienced severe reactions to noises or music and, more than this, to know if any of you got over this. - Queenie - This area of sensitivity to sounds is one I can relate to here and there.  I do own ear muffs (sound ear protectors) and sometimes wear them (at home) since by reducing normal background sounds, I can concentrate at little better.  I can listen to a song involving a person singing with musical accompaniment in the background and I tend to hear the musical accompaniment far better than the words to the song.  If the song (song words) is fast paced like normal conversation, I tend to understand much of it.  If the song/song words are stretched out, I tend not to understand the stretched out song at all.  In playing a piano, I can hear the melody (often right hand) yet I cannot completely grasp the stacking of notes (often left hand known as chording).  I prefer acappela to musical accompaniment.  I experience normal background sounds as distracting.  I am aware that there are some subtle, rare epilepsies where sounds can cause seizures in a few persons (Mary Hart voice epilepsy).  Over the years I slowly learned there are a few names/labels for subtle auditory processing issues.  For me, caffeine (Tirend, NoDoz) allow me to hear and interpret conversations, words about 3% better.  This is my experience and it is believed to be quite rare.  My medical doctor said some of the subtle questions I ask about perception, cognition, thinking, brain concussion, alertness, and sustained attention are only asked by about 1/800 office patients.  X-ref:  selective sound sensitivity, central auditory processing disorders, hyperacusis, sensory overload, neurology, hemiparesis (subtle weakness), post concussion syndrome, etc.  Best wishes to you and your partner in your current circumstances. - Charles

Queenie,,,  I am   7  years  out,,,  and  still  do  not  care  for   music,,  and   louder  noises...  I  can  not   drive  and  listen  to  a  conversation,  or  the  radio..... Crowds  still   cause  me  to  find  a  quiet  corner,,  or  a  one  on  one   visit...    I  like  music,  do  not  take  it  wrong,  but   its  the  concentration  that  is   effected....and   now  I  just  lost  my  train  of  thought, as  my  two little grand  daughters  are  asking  for  help,,,,    which  is  a  good    distraction ! ! ! ! !  more  later....


 

Charles,

This is very interesting to me.  I love music, and I write some, and I sing.  I would really like to be able to "make" some music that was "pleasant" for folks with TBI and sensitivity to music to enjoy. So you are saying that acappela, moderatey-paced, single-voice, strong melody is the best for you?   Any other thoughts on this?  Anyone? 

Vicky

Made me laugh...Vicky



Vicky Varichak said:


 

Charles,

...So you are saying that acappela, moderatey-paced, single-voice, strong melody is the best for you?...

Yes, Vicky, that is what I am saying best works for me.

- Charles



Glen Brist said:

...I am   7  years  out,,,  and  still  do  not  care  for   music,,  and   louder  noises...  I  can  not   drive  and  listen  to  a  conversation,  or  the  radio..... Crowds  still   cause  me  to  find  a  quiet  corner,,  or  a  one  on  one   visit...    I  like  music,  do  not  take  it  wrong,  but   its  the  concentration  that  is   effected...

...

Glen - Thank you for sharing your comments above.  Like you, I can drive but I do not use the radio.  I intentionally keep the radio off.  Also, I drive and tend to say little/almost zero while at the steering wheel when there is a passenger in the car.  It's about the best way to pay attention, to concentrate, to focus while driving when a person finds normal background sounds/conversations/music distracting. - Charles

Concept:  Single tasking vs multi tasking;  reducing sensory overload, managing post concussion syndrome, residual effects of a subtle brain concussion, etc.



Vicky Varichak said:

Made me laugh...Vicky

...

Vicky - Also made me laugh. - Charles

I just had my 10 year birthday as a survivor. 

For the first7 or 8 years I could not listen to music for more than a few seconds. ?.l would hear info commercials where the songs play for short amounts of time and love it. Once I order the cd I found I could not listen to them. After time I began to be able to listen to the music of my youth where I was very familiar with the words and music.....nothing new or surprising....today I can listen to some music, but still prefer to listen to conversations or talk radio.....I need a radio host who sounds like a person having a normal conversation not yelling or that slow drawn oit PBS/NPR stuff.

I have enjoyed native American flute music since my accident as long as it has a lowpitched flute.

The other noises you mention such as lips, licking and such are killers for me....stirring with a spoon, tapping of any kind, crinkling paper/plasic, clocks ticking are all overstimulations that have strong effect and even cause mood changes beyond my control.....just the other day, a very good day, my wife called me on the phone while she was driving. She stopped at a stop light with the turnsignal on and I could hear it in the background. Within a very short time I was being effected by the noise and became agitated......agitated in a way that might be different than angery and mad....just wound up and uncomfortable. 

Like so many others here, I avoid crowds, movies, concerts, fireworks, big stores.

In my case my symptoms are always slowly changing. Some go away to be replaced by new ones. They can come on slowly and mildly at first and then go on to be Sevier......it would not suprise me if your partner grows more sensitive to the dog over time. I found that managing copping skills helped alot.....before I learned to watch for triggers(licking dog in this cae) I would just cowboy up and forced myself into a very dangerous over stimulated state.

You can not expect the dog to understand and change it's behavior and you can not expect your partner to just suck it up.....hard choices may be needed.....I had to give up the best dog I ever had for her sake as well as mine.....and I needed companionship greatly at the time.

God Bless you

hi Vicky..sounds of silence made me laugh out loud...thank you :) I am fortunate I can listen to radio, music...but I get agitated quickly when there are multiple stimulants going on at once... my dogs noises don't bother me, but other peoples do, also the sounds of peoples utensils ect while eating drives me crazy!..lol.(that is so nice to verbalize as I haven't told any of my friends or family that)... I find smaller places for that worst...that  seems strange to me but that is how I am....it just occurred to me that I wonder if not having any control of the situation increases agitation...ex when im at friends or family im trying to socialize...to fit in, although noises driving me crazy.. but if im out somewhere I can leave when I want, change places ect.(hmmm...ill have to watch myself). I live by myself so I can control the environment....shauna

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